Magalie Day Six - Good News and Bad

This has been a mixed day. It started well. Magalie pretty much slept through the night. She was in decent spirits early and ate the most for breakfast she has had since surgery. We went for a wagon ride down the hall and met a little boy with terminal cancer. He had a brain tumor removed and was out for a walk. Since then, though, Magalie lost her IV line and they had a terrible time replacing it. It took four tries the first time. Then the new one got infiltrated, and Magalie was uncomfortable all afternoon. They quit using the new line and it took two more tries to get another one in.

Meanwhile the docs are all concerned about her losing spinal fluid out her nose. They are going to put a drain in her spine tomorrow (Friday the 18th). Not sure when we may go home. I will stay in the hospital again tonight, then go home
tomorrow to spend some time with Alex and pick David up after school.

Pictures from yesterday's CAT scan:

KSTP

Magalie and her friends from KSTP, channel 5, Tim and Kevin. Check out their story at http://kstp.com/news/stories/s1280263.shtml.

New Info

This morning, Charlene and Magalie took off for Rochester on thier own. Alex has an appointment this afternoon and I need to be here to get him to it. Magalie was not able to eat anything solid because they are putting her to sleep to do an MRI. Apparently that is standard procedure, but it makes us nervous because it was the anesthesia the hospital mentioned in conjunction with all the bad things that could happen (paperwork written by their lawyers, I am sure, but no less scary). As I write this Magalie is in the MRI and it will be another hour before she is recovered.

Also, we learned yesterday that what we have been calling a tumor is actually part of her brain protruding beyond the cranium. That makes me much more nervous about the surgery than I was. Please keep this little girl in your prayers.

Magalie the TV star

Right now we are at the Starbucks in the Barnes and Noble in the Rochester Mall. it doesn't get much better than that. Magalie is napping, Charlene is reading, and I am blogging. We have second and third appointments this afternoon. This morning we met the primary care doc, a pediatrician named Dr. Phil Fischer (photo on the left).

Magalie was on local channel 5 Sunday night. Since then every time we go out someone will say, "We saw you on TV." It's a wonderful conversation starter. You can see the short version at http://kstp.com/news/stories/s1280263.shtml. They plan to post the longer version later in the week. When I catch it, I will let you know by posting the link here.