Mia Culpa! It has been almost a week since I updated the site. Magalie is recovering steadily but very slowly. We've actually been back in the hospital since my last report and I just got overwhelmed. I was in church last night for the first time in almost a month. Charlene hasn't been yet.
We came home Friday. Saturday was okay; we had a big gathering at the house - family game day, about 15 people altogether. Diane did the cooking for two meals. Charlene mostly cared for Magalie. Saturday night was rough. Magalie didn't sleep well. Sunday morning she could not be consoled. We called the neurologists and together decided to take her back to Mayo on the theory that her spinal fluid might be building up. We checked into the ER and they admitted her.
Monday she was released again on the theory that the spinal pressure issue will resolve itself. They said it was not uncommon for a patient to take this long and longer to recover from the kind of surgery she has had. She has periods of feeling good - playing and singing and dancing. And times of feeling really bad - needing to be held. Sometimes she eats very well and other times she won't eat or drink anything. Each day is a little better than the one before, but very the progress is very slow.